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Disability Support

 

 

The American Association on Mental Retardation
National organization for professionals and others interested in the field of mental retardation.

Angomia Alliance
Angioma Alliance is a non-profit all-volunteer organization dedicated to improving the lives of those affected by cavernous angioma of the brain and spine through education and support.

The Arc's Sibling Support Project
Seeks to increase the peer support and information opportunities for brothers and sisters of people with special needs and to increase parents' and providers' understanding of sibling issues.

Brain Injury Association of America
Creating a better future through brain injury prevention, research, education and advocacy.

Cerebral Palsy Connection
CPC exists to allow those with CP to communicate with each other. CPC soul existence is to bridge the gap and tries to help people realize they are not alone in the world in everything that must be dealt with CP.

Cerebral Palsy Support Network
The Cerebral Palsy Support Network is an incorporated state-wide Self-Help Public Benevolent Institution.  In late 1995, a small group of parents of children with cerebral palsy met and founded the initial support group. Over the past few years our membership has steadily grown and we have evolved into a state-wide network.

Childhood Stroke and Hemiplegia Connections of Illinois CSHC of IL is a local support and information group formed in April of 2002.   Our goal is to give families of children with hemiplegia, Hemiparesis, Diplegia and/or Stroke a chance to connect and interact in person.  We provide family support and local resource information, parent meetings with guest speakers, and family outings. 

Different Strokes
A UK support group for young stroke survivors

Down Syndrome Home Page
Home page for the Down syndrome listserv.

Family Village
We are a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

The Foundation Center
Tips for finding funding sources and writing proposals.

Hemi-Help
Offering information and support to families where there is a child with childhood acquired hemiplegia.

The Hydrocephalus Association
Includes Hydrocephalus fact sheet.

Hydrocephalus Foundation
Is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome.

Including Your Child
Information covering the first eight years of a special needs child's life.

The Institute for Community Inclusion
Advocates for the right of all people with disabilities to be full participants in their communities.

Internet Resources for Special Children (IRSC)
Web site with information relating to the needs of special children on a global basis.

Kidpower
Together by Chance - United for Change...because children have an extraordinary power to overcome enormous obstacles.  KidPower is a support and informational site for families living with cerebral palsy and other disabilities.

March of Dimes
Provides information, resources, referrals and data intended to assist the public in having healthy pregnancies and healthy births. The web site also provides information for health care professionals and offers opportunities for volunteering in March of Dimes fundraising events.

National Organization on Disability
A national advocacy organization which promotes the full participation and contribution of America's 54 million people with disabilities, through Harris surveys and programs addressing community accessibility, emergency preparedness, employment, religious participation, and other aspects of life.

National Organization for Rare Disorders
Technical assistance and information dissemination on rare disorders.

The Oaks Group
Organization of people who believe persons with developmental disabilities should be fully included in the mainstream of community life.

Our-Kids
Our-Kids is a "Family" of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. We call the list "Our-Kids". While it isn't exactingly descriptive, it avoids the pitfalls of labeling our kids anything but what they most certainly are: The wonderful little people in our lives.

PCMR- President's Committee on Mental Retardation

Rehabilitation Research and Training Center
Information On Aging with Developmental Disabilities

Shadow Buddies
Special needs dolls for special needs kids.

Special Child Magazine
Free online publication for parents and caregivers of children with special needs.

The State of the States in Developmental Disabilities
Examines public spending for mental retardation/developmental disabilities services in the United States.

Through the Looking Glass
Is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.

United Cerebral Palsy Association
UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, UCP's mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.

World Association of Persons with Disabilities
A website for persons with disabilities.

 

 

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